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Polio Selbsthilfe e.V (Germany) TO PUBLISH Dr. P. BRAUER IN ENGLISH - OCTOBER 2012

“POLIO Selbsthilfe e.V.”, a member organisation of the EPU will publish the complete works of the Peter Brauer, MD, a medical author well known in professional fora, in the form of a 228 page paperback book entitled “Aspects of Post Polio-Polio Syndrome”.

 

The publication of English version will take place around September/October 2012. The book can be pre-ordered by clicking here.

You can read an extract from the chapter “Breathing and Sleeping Disorders in Post-Polio Syndrome” can be read by clicking here:

Announcement: Help Find Solutions

Post-Polio Health International (PHI) in St. Louis, Missouri, USA, is looking for researchers worldwide, although the proposals must be in English, to submit requests for its $25,000 grant to be awarded in December 2012 for research done in 2013. The purpose of The Research Fund is to support projects that ultimately will improve the lives of polio survivors. PHI will provide funds for pilot studies intended to generate data to be used in obtaining larger grants and requests that supplement important research in progress.

The online “Call for Proposals” includes detailed criteria and submission requirements. The reports from previous recipients are online at “Prior Awards.”

Deadlines:

Postmark deadline for Phase 1: Friday, May 4, 2012.
Invitation to submit for Phase 2: Friday, July 13, 2012
Postmark deadline for Phase 2: Friday, October 5, 2012.
Final decision: Friday, December 14, 2012.

Joan L. Headley, Executive Director, Post-Polio Health International, including International Ventilator Users Network

Email: director@post-polio.org

Websites: post-polio.org, Polio Place, ventusers.org

Phone: 314-534-0475,  Fax: 314-534-5070

Mailing address: PHI, 4207 Lindell Blvd., #110

St. Louis, MO 63108-2930

All the information given belowis all expert-authored and/or peer-reviewed.

Post Polio Syndrome – Management and Treatment in Primary Care

The Post Polio Support Group in Ireland has published a book entitled “Post Polio Syndrome – Management and Treatment in Primary Care”. Written by medical professionals, including a doctor, physiotherapist, occupational therapist and speech therapist it covers all aspects of Post Polio Syndrome that are commonly met by those working in the community as well as residential and hospital settings. Although only published in English it is free to download and reproduce with due acknowledgement being given. To discover more go to http://www.ppsg.ie/publications_postpolio.html

 

Post-Poliomyelitis Syndrome

Under the submenu, entitled Post Polio Syndrome, you can read or download, an article by Prof. dr. Frans Nollet about the Post-Polio Syndrome: "Post-Poliomyelitis Syndrome". This article was written for the Orphanet Website.  Orphanet contains the rare diseases encyclopaedia for professionals, and also carries simplified versions for patients.

If you want more information on Poliomyelitis, go to: 
http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=EN&Expert=2912, where a fuller description of the condition may be read or downloaded. 

Under the submenu, entitled EFNS Guidelines there is  the "European Federation of Neurological Societies guideline on diagnosis and management of post-polio syndrome".

Another good source of information is “The March of Dimes”, www.marchofdimes.com.

 

Articles of Interest to the Healthcare Professional

1.

Pathways of change experienced by people aging with disability: a focus group study.

Yorkston KM, McMullan KA, Molton I, Jensen MP.

Disabil Rehabil. 2010 Mar 12. [Epub ahead of print]PMID: 20225933 [PubMed - as supplied by publisher] Related articles

2.

Post-polio syndrome: Pathophysiological hypotheses, diagnosis criteria, medication therapeutics.

Boyer FC, Tiffreau V, Rapin A, Laffont I, Percebois-Macadré L, Supper C, Novella JL, Yelnik AP.

Ann Phys Rehabil Med. 2010 Feb;53(1):34-41. Epub 2009 Dec 31.PMID: 20093102 [PubMed - in process] Related articles

3.

Exercise therapy and cognitive behavioural therapy to improve fatigue, daily activity performance and quality of life in postpoliomyelitis syndrome: the protocol of the FACTS-2-PPS trial.

Koopman FS, Beelen A, Gerrits KH, Bleijenberg G, Abma TA, de Visser M, Nollet F.

BMC Neurol. 2010 Jan 18;10:8.PMID: 20082714 [PubMed - in process] Related articles Free article

4.

Effects of the use of MIG3 bioceramics fabrics use--long infrared emitter--in pain, intolerance to cold and periodic limb movements in post-polio syndrome.

e Silva TM, Moreira GA, Quadros AA, Pradella-Hallinan M, Tufik S, Oliveira AS.

Arq Neuropsiquiatr. 2009 Dec;67(4):1049-53.PMID: 20069217 [PubMed - in process] Related articles Free article

5.

Psychosocial factors and adjustment to pain in individuals with postpolio syndrome.

Hirsh AT, Kupper AE, Carter GT, Jensen MP.

Am J Phys Med Rehabil. 2010 Mar;89(3):213-24.PMID: 20068433 [PubMed - in process] Related articles

6.

Dysphagia and dysphonia among persons with post-polio syndrome - a challenge in neurorehabilitation.

Söderholm S, Lehtinen A, Valtonen K, Ylinen A.

Acta Neurol Scand. 2010 Jan 6. [Epub ahead of print]PMID: 20055768 [PubMed - as supplied by publisher] Related articles

7.

Post-polio syndrome and rehabilitation.

Tiffreau V, Rapin A, Serafi R, Percebois-Macadré L, Supper C, Jolly D, Boyer FC.

Ann Phys Rehabil Med. 2010 Feb;53(1):42-50. Epub 2009 Dec 30.PMID: 20044320 [PubMed - in process] Related articles

8.

Orthotic devices and gait in polio patients.

Genêt F, Schnitzler A, Mathieu S, Autret K, Théfenne L, Dizien O, Maldjian A.

Ann Phys Rehabil Med. 2010 Feb;53(1):51-9. Epub 2009 Dec 9.PMID: 20022835 [PubMed - in process] Related articles

9.

The psychological aspects of polio survivors through their life experience.

Yelnik A, Laffont I.

Ann Phys Rehabil Med. 2010 Feb;53(1):60-7. Epub 2009 Dec 6.PMID: 20022578 [PubMed - in process] Related articles

10.

Aging and sequelae of poliomyelitis.

Laffont I, Julia M, Tiffreau V, Yelnik A, Herisson C, Pelissier J.

Ann Phys Rehabil Med. 2010 Feb;53(1):24-33. Epub 2009 Nov 10.PMID: 19944665 [PubMed - in process] Related articles

11.

Post-polio syndrome: a perspective from three countries.

Grimby G, Li J, Vandenakker C, Sandel ME.

PM R. 2009 Nov;1(11):1035-40. No abstract available. PMID: 19942191 [PubMed - indexed for MEDLINE] Related articles

12.

[Post-polio syndrome]

Genêt F, Théfenne L, Boyer F.

Rev Prat. 2009 Oct 20;59(8):1085-6. French. No abstract available. PMID: 19894447 [PubMed - indexed for MEDLINE] Related articles

13.

High incidence of osteoporosis and fractures in an aging post-polio population.

Mohammad AF, Khan KA, Galvin L, Hardiman O, O'Connell PG.

Eur Neurol. 2009;62(6):369-74. Epub 2009 Oct 1.PMID: 19797901 [PubMed - indexed for MEDLINE]Related articles

14.

Fatigue in post-poliomyelitis syndrome: association with disease-related, behavioral, and psychosocial factors.

Trojan DA, Arnold DL, Shapiro S, Bar-Or A, Robinson A, Le Cruguel JP, Narayanan S, Tartaglia MC, Caramanos Z, Da Costa D.

PM R. 2009 May;1(5):442-9.PMID: 19627931 [PubMed - indexed for MEDLINE] Related articles

15.

Change in lower limb isokinetic muscle strength of polio survivors over 5-year follow-up.

Saeki S, Hachisuka K.

J UOEH. 2009 Jun 1;31(2):131-42.PMID: 19530559 [PubMed - indexed for MEDLINE] Related articles

16.

Changes in ability, perceived difficulty and use of assistive devices in everyday life: a 4-year follow-up study in people with late effects of polio.

Thorén-Jönsson AL, Willén C, Sunnerhagen KS.

Acta Neurol Scand. 2009 Nov;120(5):324-30. Epub 2009 Jun 10.PMID: 19519806 [PubMed - indexed for MEDLINE] Related articles

17.

Development, standardisation and pilot testing of an online fatigue self-management program.

Ghahari S, Packer TL, Passmore AE.

Disabil Rehabil. 2009;31(21):1762-72.PMID: 19479510 [PubMed - indexed for MEDLINE] Related articles

18.

Relationship between participation in life situations and life satisfaction in persons with late effects of polio.

Lund ML, Lexell J.

Disabil Rehabil. 2009;31(19):1592-7.PMID: 19479499 [PubMed - indexed for MEDLINE] Related articles

19.

Importance of neurological evaluation before reverse shoulder arthroplasty in patients with previous poliomyelitis.

Castoldi F, Lollino N, Caranzano F, Assom M.

Prosthet Orthot Int. 2009 Jun;33(2):167-72.PMID: 19367520 [PubMed - indexed for MEDLINE] Related articles

20.

Unicondylar knee arthroplasty in a patient with poliomyelitis.

Middleton FR, Boardman DR, Abbassian A, Maurice HD.

J Surg Orthop Adv. 2009 Spring;18(1):35-8.PMID: 19327264 [PubMed - indexed for MEDLINE] Related articles

 

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