Dear EPU Member,
First of all, I want to apologize for the lack of progress that has been made in the last two years. A number of things, outside our control, counted against us, but rather than make excuses, can we please look forward, as we are now going forward, and have made good plans for the future.

We now have registered our company in Belgium, and have opened a bank account in Huldenberg, Belgium (we will send you the details soon). The change from having it in the UK was because the alteration in the value of sterling was costing us considerably.

We have joined the Federation of European and International Associations (FAIB) after a lengthy application, as we understand they will be very helpful in any negotiations with the European Committee.

We are also members of  the EFNA (European Federation of Neurological Associations) and EURORDIS (European Organization of Rare Diseases) and are registered in PatientView.

We have had a fruitful meeting in Amsterdam with Prof. Frans Nollet (you will remember he spoke in both Como and the European Parliament). Out of this meeting it has been decided to hold a European Conference with European Polio experts, and this should take place in the second half of 2010. At the moment we are starting to put arrangements in place, and we will keep you informed. Frans also gratefully accepted to be medical advisor of the EPU. He also studied the concept of the EPU register and gave some useful comments about this project.

We have arranged our AGM for this year to take place in Lille, north-east France, on Sat. 19th September. Full details will be circulated to all during July, but please note the date.

A lot of work has gone into the website, and it will be completed by the end of July. So please log onto  on 31st July and we hope and think you will be pleased.

Our new leaflet is being proofed and will be available once the details have been completed. It will be sent to you by the end of June.

I hope that you will see that we have been working on your behalf, and once again I apologize for delays in recent times. I will write to you again with full details of the AGM in a few weeks.
Yours sincerely,