The EPU is a growing organisation. In 2003 some people first came up with the idea of starting a European umbrella organisation, in 2006 this became more specific when representatives of 9 countries had a meeting during a Polio Conference in Italy. There they decided to really make the EPU work!
The Board of the EPU consists of the following members:
- David Mitchell, United Kingdom (President)
- Pat McGillion, Ireland (Vice President)
- Tine Tournicourt, Belgium (Treasurer)
- Stefan Grajcar, Slovakia (Secretary)
- Macrina Clancy, Ireland
- Robert Cordier, France
- Michal Haindl, Czechia
- Frances Quinn, United Kingdom
- Paul Neuhaus, Germany
Medical advisor
Prof. Dr. Frans Nollet, Academical Medical Hospital, Amsterdam, The Netherlands
The EPU joined:
- The EFNA (European Federation of Neurological Associations)
- EURORDIS (European Organisation of Rare Diseases)
- PatientView, European Patient Group Directory
- Fédération des Associations Européennes et Internationales établies en Belgique – FAIB (Federation of European and International Associations established in Belgium)